I have people tell me that she changed their lives. Rarely does a week go by that I don't get a letter about that book. "Invariably, and happily, there's usually someone at each appearance who either brings that book or wants to talk about their connection to cystic fibrosis." Deford says. But what makes him happiest is when someone attends a sports-oriented lecture and brings a copy of Alex: The Life of a Child for him to sign. Whenever he speaks, sportswriter Frank Deford knows people will bring articles for him to sign. A new introduction contains information on the latest cystic fibrosis research, and a touching postcript reveals how the Deford family came to terms with the loss of Alex.
Her poignant and uplifting story touched the hearts of millions when it was first published and then made into a memorable television movie.
Alexandra Deford, a precious and precocious girl, was just eight years old when she died in 1980 following a battle against the debilitating effects of cystic fibrosis, the number-one genetic killer of children.
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